Caregiver Burden in Chronic Diseases: Role of Perceived Social Support and Duration of Care in Arthritis and Diabetes

Authors

  • Maryam Umar Department of Psychology, Forman Christian College University Lahore Pakistan
  • Maryam Farooq Munir Department of Psychology, Forman Christian College University Lahore Pakistan
  • Saima Majeed Department of Psychology, Forman Christian College University Lahore Pakistan

DOI:

https://doi.org/10.51253/pafmj.v76iSUPPL-1.12709

Keywords:

Arthritis, Caregiver Burden, Caregiving Duration, Diabetes, Perceived Social Support, Caregivers

Abstract

Objective: To assess the relationship between caregiver burden and perceived social support, and caregiver burden and caregiving duration of arthritis and diabetes, and to analyze gender differences.

Study Design: Cross-sectional study

Place and Duration of Study: Fatima Memorial Hospital, Combined Military Hospital Lahore, Pakistan, from Feb to Mar 2024

Methodology: The study comprised 388 caregivers of individuals with arthritis and diabetes. The data were distributed into four equal groups (n=97, 25% each): male caregivers of diabetes patients, female caregivers of diabetes patients, male caregivers of arthritis patients, and female caregivers of arthritis patients. Voluntary consenting caregivers partook in filling out the ZBI-22 and MSPSS questionnaires measuring caregiving burden.

Results: Out of 388 caregivers of arthritis and diabetes patients, a small negative correlation between caregiving burden and perceived social support (r=0.27, p<0.05), while caregiving duration had no significant effect on caregiving burden (r=0.03, p>0.05). The caregiving burden was higher for arthritis caregivers (Mean±SD 30.74 ±14.831) and female caregivers(Mean±SD= 29.20 ±14.91), while perceived social support was higher for diabetes (Mean±SD=  62.09±14.482) and female caregivers (Mean±SD= 61.92±14.42). Caregiving duration was higher for diabetes (Mean±SD= 4.48±1.87) and male caregivers (Mean±SD= 4.37 ± 1.88).

Conclusion: The study, conducted in Lahore, Pakistan, emphasizes the importance of disease-specific factors in caregiving, finding that greater perceived social support reduces caregiving burden, while caregiving duration has little effect. Caregivers of arthritis and female caregivers reported a higher burden than caregivers of diabetes and male caregivers. The study calls for comprehensive support systems and policies to assist caregivers.

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References

1. Liu Z, Heffernan C, Tan J. Caregiver burden: A concept analysis. Int J Nurs Sci 2020; 7(4): 438-445.

https://doi.org/10.1016/j.ijnss.2020.07.012

2. Bevans M, Sternberg EM. Caregiving Burden, Stress, and Health Effects Among Family Caregivers of Adult Cancer Patients. JAMA 2012; 307(4).

https://doi.org/10.1001/jama.2012.29

3. González-Fraile E, Ballesteros J, Rueda JR, Santos-Zorrozúa B, Solà I, McCleery J. Remotely delivered information, training and support for informal caregivers of people with dementia. Cochrane Database Syst Rev 2021; 1(1): CD006440.

https://doi:10.1002/14651858.CD006440.

4. Dang S, Badiye A, Kelkar G. The Dementia Caregiver—A Primary Care Approach. South Med J 2008; 101(12): 1246–1251.

https://doi.org/10.1097/smj.0b013e318187cccc

5. Rudan I, Sidhu S, Papana A, Meng SJ, Xin-Wei Y, Wang W, et al. Global Health Epidemiology Reference Group (GHERG). Prevalence of rheumatoid arthritis in low- and middle-income countries: A systematic review and analysis. J Glob Health 2015; 5(1): 010409.

https://doi:10.7189/jogh.05.010409.

6. Salci MA, Meirelles BHS, Silva DMVG da. Prevention of chronic complications of diabetes mellitus according to complexity. Rev Bras Enferm 2017; 70(5): 996-1003.

https://doi.org/10.1590/0034-7167-2016-0080

7. Kim Y, Loscalzo MJ, Wellisch DK, Spillers RL. Gender differences in caregiving stress among caregivers of cancer survivors. Psychooncology 2006; 15(12): 1086-1092.

https://doi.org/10.1002/pon.1049

8. Pinquart M, Sörensen S. Gender differences in caregiver stressors, social resources, and health: An updated meta-analysis. The Journals of Gerontology Series B: J Gerontol B Psychol Sci Soc Sci. 2006; 61(1): P33-45.

https://doi.org/10.1093/geronb/61.1.p33

9. Irfan B, Irfan O, Ansari A, Qidwai W, Nanji K. Impact of caregiving on various aspects of the lives of caregivers. Cureus 2017; 9(5): e1213 https://doi.org/10.7759/cureus.1213

10. Al-Rawashdeh SY, Lennie TA, Chung ML. Psychometrics of the Zarit Burden Interview in caregivers of patients with heart failure. J Cardiovasc Nurs 2016; 31(6): E21-28.

https://doi.org/10.1097/jcn.0000000000000348

11. Ekbäck M, Benzein E, Lindberg M, Årestedt K. The Swedish version of the multidimensional scale of perceived social support (MSPSS)-a psychometric evaluation study in women with hirsutism and nursing students. Health Qual Life Outcomes 2013; 11: 1-9.

https://doi.org/10.1186/1477-7525-11-168

12. Cohen S, Wills TA. Stress, social support, and the buffering hypothesis. Psychological bulletin 1985; 98(2): 310- 357.

https://doi.org/10.1037/0033-2909.98.2.310

13. Falzarano F, Moxley J, Pillemer K, Czaja SJ. Family matters: Cross-cultural differences in familism and caregiving outcomes. J Gerontol B Psychol Sci Soc Sci 2022; 77(7): 1269-1279.https://doi.org/10.1093/geronb/gbab160

14. Xu L, Liu Y, He H, Fields NL, Ivey DL, Kan C. Caregiving intensity and caregiver burden among caregivers of people with dementia: The moderating roles of social support. Arch Gerontol Geriat 2021; 94: 104334.

https://doi.org/10.1016/j.archger.2020.104334

15. Hajek A, Kretzler B, König HH. Informal caregiving, loneliness and social isolation: A systematic review. Int J Environ Res Public Health 2021; 18(22): 12101.

https://doi.org/10.3390/ijerph182212101

16. Li Y, Li J, Zhang Y, Ding Y, Hu X. The effectiveness of e-Health interventions on caregiver burden, depression, and quality of life in informal caregivers of patients with cancer: A systematic review and meta-analysis of randomized controlled trials. Int J Nurs Stud 2022; 127: 104179.

https://doi.org/10.1016/j.ijnurstu.2022.104179

17. Gérain P, Zech E. Do informal caregivers experience more burnout? A meta-analytic study. Psychol. Health Med 2021; 26(2): 145-161.

https://doi.org/10.1080/13548506.2020.1803372

18. Untas A, Vioulac C, Boujut E, Delannoy C, Poivret D, Rat AC, et al. What Is Relatives' Role in Arthritis Management? A Qualitative Study of the Perceptions of Patient-Relative Dyads. Patient Prefer Adherence 2020; 14: 45-53.

https://doi:10.2147/PPA.S231919.

19. Marinho JDS, Batista IB, Nobre RADS, Guimarães MSA, Dos Santos-Orlandi AA, Brito TRP, et al. Burden, satisfaction caregiving, and family relations in informal caregivers of older adults. Front Med 2022; 9: 1059467.

https://doi:10.3389/fmed.2022.1059467.

20. Costa S, Leite Â, Pinheiro M, Pedras S, Pereira MG. Burden and quality of life in caregivers of patients with amputated diabetic foot. Psych J 2020; 9(5): 707-715.

https://doi:10.1002/pchj.341

21. Van Orden KA, Heffner KL. Promoting Social Connection in Dementia Caregivers: A Call for Empirical Development of Targeted Interventions. Gerontologist 2022; 62(9): 1258-1265.

https://doi:10.1093/geront/gnac032.

22. Galloway J, Edwards J, Bhagat S, Parker B, Tan AL, Maxwell J, et al. Direct healthcare resource utilisation, health-related quality of life, and work productivity in patients with moderate rheumatoid arthritis: an observational study. BMC Musculoskelet Disord 2021; 22: 1-1.

https://doi.org/10.1186/s12891-021-04110-1

23. Choi JY, Lee SH, Yu S. Exploring Factors Influencing Caregiver Burden: A Systematic Review of Family Caregivers of Older Adults with Chronic Illness in Local Communities. Healthcare 2024; 12(10): 1002.

https://doi:10.3390/healthcare12101002.

24. Socci M, Di Rosa M, Quattrini S, et al. The impact of the pandemic on health and quality of life of informal caregivers of older people: results from a cross-national European survey in an age-related perspective. Appl Res Qual Life 2024; 19: 1385–1410. Bottom of Form

https://doi:10.1007/s11482-024-10296-y.

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Published

30-01-2026

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How to Cite

1.
Umar M, Munir MF, Majeed S. Caregiver Burden in Chronic Diseases: Role of Perceived Social Support and Duration of Care in Arthritis and Diabetes. Pak Armed Forces Med J [Internet]. 2026 Jan. 30 [cited 2026 Feb. 6];76(SUPPL-1):S77-S82. Available from: https://www.pafmj.org/PAFMJ/article/view/12709